2018 Reinventing Quality Conference: Building an Infrastructure that Promotes Equity and Diversity


2007 Reinventing Quality Conference
Conference Materials

Conference Program

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Opening Plenary

Welcome and Opening Remarks/From Good Services to Good Lives
The opening plenary included welcoming remarks from three of the sponsors of the conference including Valerie Bradley, HSRI; Robert Gettings, NASDDDS; and Stan Butkus, Director of the South Carolina Department of Disabilities and Special Needs.

The first plenary speaker, Michael Smull, discussed how we can move beyond just helping people be healthy and safe, to helping people to be happy or to engage in the pursuit of happiness. Mr. Smull presented what has been learned about helping people balance happiness with health and safety, so that people can be both “happy and safe” or “happy and healthy.” He also addressed what it will take to have the minimum expectation for service quality be that our services support people in having good lives. The other plenary speakers, Addie Daskam and Sam Jenkins, helped to understand what the “good life” means to self-advocates.
PDF Icon View/Download This Presentation Smull (609 KB)
Moderator:
Val Bradley; President, Human Services Research Institute (HSRI)
Presenters:
Stan Butkus; Director, South Carolina Department of Disabilities & Special Needs
Adelaide Daskam; Co-Owner, Jump Start, LLC
Robert Gettings; Executive Director, National Association of State Directors of Developmental Disabilities Services (NASDDDS)
Samuel Jenkins; Co-Owner, Jump Start, LLC
Michael Smull; CEO, Support Development Associates (SDA)

Concurrent Workshops 1


Research Experiences in the United Kingdom (Outcomes)
Professors Emerson and Hatton drew on recent research in England to identify key determinants of the quality of life of people with intellectual and developmental disabilities.

Dr. Emerson described the process and results of the first national survey undertaken in England on the life experiences of adults with intellectual disabilities. He addressed issues relating to the definition and measurement of “life experiences”, the involvement of researchers with intellectual disabilities in large scale social surveys, and making results and data accessible to diverse audiences.

Dr. Hatton discussed some of the issues involved in evaluating the quality of supports and the potential inequalities experienced by people with intellectual disabilities and their families from particular cultural groups, drawing on recent UK initiatives in this area. Issues included designing and using quality indicators that work across diverse communities, designing and using information systems to evaluate the quality of supports experienced by different cultural groups, and designing and using information systems to assess potential inequalities in access to service supports.
PDF Icon View/Download This Presentation Emerson (803 KB)
Moderator:
Roger Stancliffe; Dr, University of Minnesota
Presenters:
Eric Emerson; Professor of Disability & Health Research, Institute for Health Research
Chris Hatton; Professor, Lancaster University

Putting the Person Back in Person Centered Planning (Person-Centered)
States have required that their “plan of care” be person-centered for a decade or more. Yet, most plans are more form than substance. The structure of the plan is person-centered but the content is not. Having the person and their voice at the center of the plan will not happen through more training for those who write plans — it will only happen when efforts are made to give the person control over the content and when those that work with the person have the value-based skills that go with the development and implementation of good plans. The presenters will share their efforts in —
PDF Icon View/Download This Presentation Sartain (264 KB)
PDF Icon View/Download This Presentation Lewis (528 KB)
Moderator:
Michael Smull; CEO, Support Development Associates (SDA)
Presenters:
Ted Cottini; Life Guide, We Care A Lot Foundation
Thomas Lewis; Advocate, Neighbours, Inc.
Patti Scott; Chief Executive Officer (CEO), Neighbours, Inc
Brandy Totten; Life Guide, We Care A Lot Foundation

State Employment Leadership Network (Jobs)
The State Employment Leadership Network (SELN) is a new multi-state technical support initiative established to assist state developmental disabilities agencies improve the employment outcomes achieved by adolescents and adults receiving publicly financed support. The Network is led jointly by the National Association of State Directors of Developmental Disabilities Services (NASDDDS) and the Institute for Community Inclusion at the University of Massachusetts-Boston (ICI). Operations are managed by representatives to ensure activities are congruent with each state’s needs. Participating states receive technical assistance and support for innovation and exploration through a dynamic “community of practice” involving monthly Network
meetings, topical teleconferences and collaborative problem-solving opportunities. These and other activities enable states to share expertise and “lessons learned” across state lines, facilitating new connections to address old barriers related to rate setting, data management, staff training and other issues. During the discussion portion of the session, Angela Rapp Kennedy, the NASDDDS SELN Project Coordinator, and John Butterworth, Ph.D., Research Coordinator, ICI UMass-Boston, also addressed questions about the network.
PDF Icon View/Download This Presentation Moseley (898 KB)
PDF Icon View/Download This Presentation Butkus (44 KB)
PDF Icon View/Download This Presentation Rolfe (269 KB)
PDF Icon View/Download This Presentation Herman (2.04 MB)
Other Workshop Materials
PDF IconButkus Attachment A Butkus (68 KB)
Moderator:
Chas Moseley; Director of Special Projects, National Association of State Directors of Developmental Disabilities Services (NASDDDS)
Presenters:
Stan Butkus; Director, South Carolina Department of Disabilities & Special Needs
LeeAnn Herman; Employment Coordinator, Agency for Persons with Disabilities
Linda Rolfe; Director, Division of Developmental Disabilities, Washington DSHS

Providers Supporting True Community Membership (Community)
These two presentations described how provider organizations can fulfill a critical role in helping to support people to be true members of their communities, to develop friendships and relationships, and to take on new social roles. One organization, Ray Graham Associates, has enhanced its ability to support new social roles for its clients by shifting from a traditional provider organization to one that is focused on valued outcomes. The second organization, Hope House Foundation, has built an involved and robust workforce that is excited about connecting people to their communities through events, partnerships and relationships.
PDF Icon View/Download This Presentation Terrill (283 KB)
Moderator:
Val Bradley; President, Human Services Research Institute (HSRI)
Presenters:
Lynne Seagle; Executive Director,, Hope House Foundation
Cathy Ficker Terrill; President and CEO, Ray Graham Association for People with Disabilities

Positive Behavioral Approaches (Health)
This presentation described a systems change effort underway in South Carolina in positive behavioral supports by the SC Department of Disabilities & Special Needs in collaboration with the USC Center for Disability Resources. The effort by these organizations and its contractor, Habilitative Management Consultants, Inc. has included key components including modification of the Medicaid Waiver service of behavior supports, the qualification process for providers, training for staff (supervisors, direct support, behavior support plan authors), and quality assurance. Presenters provided information on the overall effort including changes in the Medicaid MR/RD waiver, training for supervisors with the AAIDD Positive Behavior Support Training Curriculum, training for direct support professionals by local provider agencies, and training for behavior support plan authors.
PDF Icon View/Download This Presentation Rotholz (331 KB)
Moderator/Presenter:
David Rotholz; Project Director, Clinical Associate Professor, Center for Disability Resources, University of South Carolina
Presenters:
Donna Boyd; Director of Personnel, Tri-Development Center
Dennis Reid; CEO, Habilitative Management Consultants, Inc.
Raynard Salley; QMRP, Chester-Lancaster DSNB

Concurrent Workshops 2


Outcomes in Self-Determination, Well-Being, Services Access and Expenditures: Findings from the Experiences of 3,000 HCBS and ICF/MR Recipients from Six States (Outcomes)
This paper reports on outcomes experienced by almost 3,000 HCBS and ICF/MR recipients from six states. The data were drawn from the National Core Indicators program. The outcomes include self-determination, wellbeing, services access and expenditures. We examined the pattern of outcomes by Medicaid program (HCBS or ICF/MR), degree and type of disability and other characteristics.
PDF Icon View/Download This Presentation Stancliffe (92 KB)
Moderator:
K. Charlie Lakin; Research and Training Center on Community Living, University of Minnesota
Presenters:
Roger Stancliffe; Dr, University of Minnesota
Sarah Taub; Project Director, Human Services Research Institute (HSRI)

Making Self-Determination a Reality (Person-Centered)
This session presented two systematic county-level efforts to shift from a systems-based model to a self-determination model in which individuals with developmental disabilities and those who speak for and with them determine how to obtain needed services within the funds available to them. Presenters from Michigan and from Wisconsin discussed the systems change processes utilized to shift the system to make self-determination principles real. Two self-advocates explained how their lives have changed because of these systematic changes.
PDF Icon View/Download This Presentation Rossiter (527 KB)
PDF Icon View/Download This Presentation Durkee (2.4 MB)
Moderator:
Angela Novak Amado; Research and Training Center on Community Living, University of Minnesota
Presenters:
Sadler Bell; Self-Advocate, Dane County
Beth Durkee; Director of Services for People with Developmental Disabilities, Allegan County Community Mental Health Services
Lance Lacy; Self Advocate, Allegan CMH
Dan Rossiter; Community Services Manager, Dane County

Access to Community Health Services and Supports (Health)
This session focused on initiatives in two states designed to improve individual health and wellness. The “Steps to your Health” program and curriculum developed at the University of South Carolina provides education and training to individuals about having a healthy diet, being physically active and reducing stress in their lives. The second presenter discussed
the results and lessons learned from an evaluation of a 3-year systems change demonstration project to improve primary health care for adults with intellectual disabilities who live in community settings in North Carolina.
PDF Icon View/Download This Presentation McDermott (38 KB)
Moderator:
June Rowe; Senior Project Director, Human Services Research Institute (HSRI)
Presenters:
Suzanne McDermott; Professor, University of South Carolina
Kathryn Moss; Ph.D., Cecil G. Sheps Center for Health Services Research

Concurrent Workshops 3


Using Data to Enhance Outcomes (Outcomes)
This session focused on how three states (Florida, California and Tennessee) are collecting and analyzing data at the local and statewide levels to identify areas for risk prevention and improving services and supports for individuals with developmental disabilities. The speakers presented on data sources such as personal outcome interviews, incident management, complaint systems and quality assurance reviews. Panelists discussed mechanisms for data reporting and what they have learned to make information useful for state/local managers and stakeholder groups.
PDF Icon View/Download This Presentation Nichols (404 KB)
PDF Icon View/Download This Presentation Bischoff (243 KB)
PDF Icon View/Download This Presentation Foley (890 KB)
Moderator:
June Rowe; Senior Project Director, Human Services Research Institute (HSRI)
Presenters:
Margaret Anderson; Manager, Community Services and Supports Branch, California DD Services
Ursula Bischoff; Senior Research Associate, Acumen LLC
Bob Foley; Director of DD Programs, Delmarva Foundation
Patricia Nichols; Director of Quality Assurance, State of Tennessee
Jonathan Wilwerding; Research Associate, Acumen LLC

Local and State Actions to Promote Family-Centered Supports (Person-Centered)
Budget shortfalls and growing wait lists are significantly affecting state policies pertaining to “family support.” In this session, the forces in play were examined and new national best practices are explored. In addition, there was be a focused presentation on activities at Juntos Podemos, an emerging new family support center in Oregon.
PDF Icon View/Download This Presentation Reyes (356 KB)
Moderator/Presenter:
John Agosta; Vice President, Human Services Research Institute (HSRI)
Presenters:
Alejandra Reyes; Director, Juntos Podemos (Together We Can) Resource Center

Using Data to Increase Employment Opportunities (Jobs)
This session described the development and implementation of employment outcome data systems in South Carolina and Massachusetts as tools for supporting systems change. Presenters shared sample data, described how the data are used in strategic planning and quality improvement, and provided examples of research findings that address consumer job loss and rehiring and the role of job coaching in employment success.
PDF Icon View/Download This Presentation Van Gelder (1.65 MB)
PDF Icon View/Download This Presentation McDermott (45 KB)
Moderator:
John Butterworth; Research Coordinator, Institute for Community Inclusion, University of Massachusetts Boston
Presenters:
Suzanne McDermott; Professor, University of South Carolina
Melayne McInnes; University of South Carolina
Margaret Van Gelder; Statewide Director of Family Supports, Office of Policy, Planning and Children’s Services, Massachusetts Department of Mental Retardation

Lessons on Community Inclusion from Ordinary Community Members (Community)
Independent Living, Inc. in Baton Rouge has won national awards for its efforts in real community inclusion. Jackie Blaney shared examples of friendships and presented the powerful tool of Community Member Forums. These forums bring community members together to inspire them in their role of creating inclusive communities, including asking them to befriend and cause membership for individuals with disabilities. Angela Amado discussed the results of national surveys of community service organizations such as Kiwanis, Jaycees, etc. concerning the degree of inclusion of individuals with disabilities in such organizations and other members’ experiences with and perspectives about their fellow members with disabilities.
PDF Icon View/Download This Presentation Amado (79 KB)
Moderator/Presenter:
Angela Novak Amado; Research and Training Center on Community Living, University of Minnesota
Presenters:
Jacquelyn Victorian Blaney; Executive Director, Independent Living Inc.

Self-Direction in Health Care (Health)
Research illustrates that people with developmental disabilities are at greater risk than others for experiencing illnesses and other secondary conditions. There are also related concerns for other aspects of life, including emotional well-being, sexuality and community safety. This session illustrated practical strategies for promoting positive health and wellness within a self-directed context. These strategies include use of (a) a peer supports network where self-advocates help others with disabilities to achieve personal and group goals, (b) food stamps extension services to promote better nutrition and
wellness, and (c) means for developing personal health related goals and taking related actions to achieve them.
PDF Icon View/Download This Presentation Wagle (250 KB)
PDF Icon View/Download This Presentation Shogren (468 KB)
Moderator:
Sarah Taub; Project Director, Human Services Research Institute (HSRI)
Presenters:
Karrie Shogren; Dr., The University of Texas at Austin
Dana Thompson; People First of Montana
Reena Wagle; Research Associate, Human Services Research Insititute

Plenary 3


Innovative Ways of Making Outcome Data Accessible to All
In 2001 the Department of Health established a policy of “Valuing People” as a framework for delivery of services to people with intellectual disabilities in England. This initiative resulted in a number of major research projects that have been conducted by Eric Emerson and Chris Hatton and their colleagues. These include: the first national survey of adults with intellectual disabilities in England; a longitudinal analysis of the impact and costs of person-centered planning in England; and development of a comprehensive framework for evaluating outcomes of people with intellectual disabilities related to Valuing People. In this presentation Professors Emerson and Hatton addressed issues relating to: the definition of
outcomes; the development of systems to routinely monitor outcomes; the use of outcome data to improve the quality of supports; and the presentation of findings in ways that are accessible and useful to individuals with intellectual disabilities to support their knowledge and capacity for self-advocacy.
PDF Icon View/Download This Presentation Emerson (962 KB)
Moderator:
K. Charlie Lakin; Research and Training Center on Community Living, University of Minnesota
Presenters:
Eric Emerson; Professor of Disability & Health Research, Institute for Health Research
Chris Hatton; Professor, Lancaster University

Concurrent Workshops 4


Outcomes Leading to Action (Outcomes)
This session focused on the quality management systems in two states — Washington and Connecticut. In Washington, the National Core Indicators are an essential part of the state’s quality management strategy — a strategy that has helped them improve performance, build partnerships and involve stakeholders in developing responsive policies. In Connecticut, the state is initiating a new system for provider review that is web-based, helps to identify system-wide problems, organizes results by outcomes and performance measures, and projects performance over time.
PDF Icon View/Download This Presentation Adams (439 KB)
PDF Icon View/Download This Presentation Nuss (754 KB)
Moderator:
Val Bradley; President, Human Services Research Institute (HSRI)
Presenters:
Janet Adams; Quality Programs and Services Chief, State of Washington, DSHS
Laura Nuss; Director, Strategic Leaderhip Division, CT DMR

Individuals in the Arts (Person-Centered)
This session addressed creativity and its transformative power to enhance an individual’s quality of life and facilitate social change by creating opportunities for access and inclusion in the arts. Each speaker addressed the experience
of individuals with disabilities in the arts from a different level of the art world. Gail Bottoms is a published poet who talked about pursuing art later in life. Rae Edelson addressed the role and purpose of an arts center in providing studio support and real careers for individuals with disabilities to become artists. Margaret Bodell presented on inclusion of people with disabilities in the art world at the national level of orchestrating art exhibitions and advising corporations on diversity within art collections.
PDF Icon View/Download This Presentation Edelson (1.76 MB)
Moderator:
Elizabeth Pell; Project Manager, Human Services Research Institute
Presenters:
Margaret Bodell; Director of Development, League Treatment Center
Gail Bottoms; Self Advocate Conference Presenter, Griffin Area Resource Center
Rae Edelson; Director, Gateway Arts/Vinfen

Exemplary Employment Practices (Jobs)
Expanding access to integrated employment requires that state systems and providers become more sophisticated in interactions with both job seekers and the business community. This session shared national and local perspectives on emerging practices in employment support. At a national level the session addressed the evolution toward a more customized employment approach and the implications for research and outcomes based intervention. At a local level, a team discussed self employment and the development of a small business, along with other creative approaches to designing and supporting individually directed career paths.
PDF Icon View/Download This Presentation Terhune (1.59 MB)
Moderator:
John Butterworth; Research Coordinator, Institute for Community Inclusion, University of Massachusetts Boston
Presenters:
Michael Callahan; President, Marc Gold & Associates, Marc Gold & Associates
Peggy Terhune; Executive Director, The Arc of Stanly County

Plenary 4


Presentation of Moving Mountains Awards
The Moving Mountains Awards are presented to organizations and agencies that have demonstrated best practice in direct support workforce development. They are awarded by the Research and Training Center on Community Living at the University of Minnesota in partnership with the National Alliance for Direct Support Professionals (NADSP). Two organizations were recognized for excellence in supporting the Direct Support Workforce for 2007: Support Providing Employees Association of Kentucky (SPEAK) and the Alaska Alliance for Direct Support Careers.
PDF Icon View/Download This Presentation Hewitt (447 KB)
Moderator:
Amy Hewitt; Training Director & Research Associate, University of Minnesota Institute on Community Integration

Concurrent Workshops 5


Active Support: Staff Training that Increases Participation in Home and Community (Outcomes)
Active Support focuses on what community-living staff do each day to support consumer participation. Although little known in the USA, extensive UK and Australian research shows that Active Support is effective in increasing direct staff support for and consumer participation in a wide variety of meaningful home and community activities. This evidence-based approach involves detailed staff training - classroom-based, as well as in the group home while working directly with consumers. The original research and development of Active Support took place in the UK, but this paper reports on research and widespread implementation in Australia. Active Support is an example of staff training that results in both changed staff behavior and
better consumer outcomes.
PDF Icon View/Download This Presentation Stancliffe (798 KB)
Moderator:
K. Charlie Lakin; Research and Training Center on Community Living, University of Minnesota
Presenters:
Roger Stancliffe; Dr, University of Minnesota

The Art of Possibility: Seamless Transition from School to Work and Adult Life (Jobs)
There’s a job for every youth who wants one, regardless of disability label, nature of disability, severity of the disability, or the economic vitality of their communities! The challenge is to help school, adult service, and vocational
rehabilitation personnel to adopt collaboration and job support strategies to make this happen. This presentation highlighted critical features of transition service integration and how it can be configured so that seamless transition from school to adult employment occurs, regardless of youths’ disability labels or nature of their previous special education service. Results from implementation of the model in local school districts in three states (CA, MD, and DE) were presented. Experiences in these systems illustrate that seamless transition (moving from the school system to the adult service system without service disruption) is nearly universal for the participants. Employment rates are also several orders of significance above the national average for youth requiring ongoing post school support. The intended result
is that the first day after school exit looks the same as the last day of school – same jobs, same community activities, and same individualized support in place.
PDF Icon View/Download This Presentation Luecking (568 KB)
Moderator:
Elizabeth Pell; Project Manager, Human Services Research Institute
Presenters:
Richard Luecking; President, TransCen, Inc.

Community Life: The Place for Quality (Community)
Quality of life is defined, measured, and improved in the context of community. We’ve continuously reinvented quality across the dimensions of programs, services, organizations, and now we focus on community.

We’ve designed Community life as an experiential exercise that enables participants to discover and explore the quality of community life in the areas of health care, education, transportation, employment, housing, and social capital. This session defined CQL’s community life initiative, focus on the CQL Community Life exercise that took place in Charleston in November, 2006, and described opportunities for replication by organizations and communities.
PDF Icon View/Download This Presentation Gardner (349 KB)
Moderator:
Jim Gardner, PhD; President & CEO, Council for Quality and Leadership
Presenters:
Kathi Lacy; Associate State Director, South Carolina Department of Disabilities & Special Needs
Beth Mathis; Quality Enhancement Specialist, CQL
Philip Owens; Senior Vice President, Charleston Metro Chamber of Commerce

State Strategies to Prevent Incidents and Reduce the Use of Restraints (Health)
By using strategies such as trend analysis and policy change, state quality management systems are improving the prevention of serious incidents, particularly for some of the most vulnerable people who receive services and supports. In this session, two states discussed efforts related to preventing serious incidents and reducing the use of restraints. Wisconsin has implemented a system of guidelines and a process for approving the use of restrictive measures that requires providers to explore other alternatives. Rhode Island, through an Incident Management Trends Analysis Committee, has been reviewing data to help generate quality improvement strategies for preventing some types of incidents.
PDF Icon View/Download This Presentation Shew (65 KB)
Moderator:
Sarah Taub; Project Director, Human Services Research Institute (HSRI)
Presenters:
Sue Babin; Administrator, Rhode Island Division of Developmental Disabilities
Kenneth Golden; Community Integration Manager, DHFS
Bob Mitchell; Community Integration Specialist, WI Department of Health and Family Services
Julie Shew; Community Integration Specialist, WI Department of Health and Family Services

Presentations by Moving Mountains Award Winners (Special)
This year’s Moving Mountains award winners, Support Providing Employees Association of Kentucky (SPEAK) and the Alaska Alliance for Direct Service Careers, shared descriptions of their workforce initiatives. Between them, they have implemented statewide planning on workforce issues, marketing campaigns, recruitment websites, DSP conferences and recognition events, frontline supervisor training, web campaigns, pre-service orientation intervention, mentoring programs, DSP organizations, and DSP associations. This session offered a chance to hear about successful statewide and regional workforce interventions from organizations that have used them well.
PDF Icon View/Download This Presentation Larson (447 KB)
PDF Icon View/Download This Presentation Frost (111 KB)
Moderator:
Sheryl Larson; Research Director, University of Minnesota Institute on Community Integration
Presenters:
Heidi Frost; Project Coordinator, Alaska Alliance for Direct Service Careers
Alex Gibbons; Senior Therapeutic Aide, Seven County Services, Inc
Jeff King; Project Coordinator, SPEAK (Support Providing Employees Association of Kentucky)
Beth Richardson; Director, CMR Leadership and Training Institute