2018 Reinventing Quality Conference: Building an Infrastructure that Promotes Equity and Diversity

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Breakout B Sessions
Monday, July 30, 2018

Watertable Ballroom

Strand: N/A

Film Screening: “Intelligent Lives

A new documentary film about three pioneering young adults with intellectual disability who challenge perceptions of intelligence, created by Dan Habib of the University of New Hampshire Institute on Disability, will be screened.

Maryland Salon B

Strand: Criminal Justice

Imagining Social Justice for Survivors of Sexual Violence with Disabilities
Leigh Ann Davis (moderator), The Arc; Sam Crane, ASAN; Penny Callan, Consultant; James Meadours, Consultant; Theresa Proctor, Consultant

#TimesUp! People with disabilities face greater risk of victimization than people without, yet programs and services created for survivors, such as rape crisis centers and domestic violence programs, and current movements/national campaigns focused on addressing sexual violence, often leave this population out altogether. #TimesUp for living in unsafe situations, not being recognized as having the same sexual desires and needs as others, being excluded from sexual education classes, and for disability and victim service systems that limit the lives, freedom, choices, personal safety and opportunities for recovery! Join us as we delve into a rich discussion about current research, stories of survivors with disabilities, and promising practices that address the intersection of sexual assault and disability.

Maryland Salon E

Strand: Expanding Self Direction Opportunities

Self-Directed Quality Discussions
Jamie O’Neal, MLTSS and Dual Eligible Initiatives and Operation, Division of TennCare; Kristin Byrd, Public Consulting Group/Public Partnerships; Mary Gardner, Public Consulting Group/Public Partnerships;

How much progress have we made toward gaining consensus in describing quality and measuring the value of our services? This session provides an overview of quality from various perspectives, including individual participants receiving self-directed services; a state program administrator responsible for implementing and managing a program; a case manager or supports broker providing information, assistance, and support to those self-directing; and from a financial management vendor charged with managing employee and employer responsibilities.

Maryland Salon A

Strand: Creating and Managing a Culture of Quality

Engaging Stakeholders to Build a Robust Critical Incident Prevention and Response System
Scott Phillips, Ohio Department of Developmental Disabilities; Connie McLaughlin, Ohio Department of Developmental Disabilities; Blaine O’Leary, consultant; Betsy O’Leary, family member; Steve Beha, Arc Ohio

A 2017 report on the status of Health and Welfare assurances in states revealed that few states had a robust, consistent approach to educating families about critical incidents, including abuse neglect and exploitation. The Ohio Department of Developmental Disabilities has taken a very active forward leaning approach to engage with many stakeholders—including families, self-advocates, local Arc associates and providers—to educate families using multiple communication methods. The keys to Ohio’s progress has been maximizing social media and using multiple distribution channels( while also including stakeholders in designing and reviewing all communication prior to launch) . Linking education to lessons learned from a robust Critical Incident Management data system has also proved beneficial. Collaborative working relationships with a focus on prevention and protection have enhance opportunities to effectively support individuals in Ohio.

Baltimore Salon B

Strand: Behavioral Health Supports

Effective Mental Health Assessment, Diagnosis, and Treatment for People with IDD
Robert Fletcher, NADD

This session will present a range of clinical issues concerning persons who have IDD with co-occurring with mental health issues. The essential bio-psycho-social components of an assessment will be reviewed and the presenter will describe how to use the Diagnostic Manual – Intellectual Disability (DMID-2) to make an appropriate psychiatric diagnosis. Finally, the session will describe adaptations to psychotherapy for use with people who have IDD.

Maryland Salon C

Strand: Person-Centered Practice

Making Person-Centered Practices the Way We Do Business
Elise Messner, The Learning Community of Pennsylvania; Rita Chamberlin, MnCHOICES-Minnesota Department of Human Services Disability Services Division ; Jill Schweisthal, MnCHOICES-Minnesota Department of Human Services Disability Services Division ; Kelly Ferenbaugh, Ohio Department of Developmental Disabilities; Tony Sampson, Consultant

This panel will showcase state, provider, and self-advocate perspectives on efforts to embed person-centered practices into organizations. Specific efforts to reinforce and support person-centered practices as a standard will be highlighted. Two state government agencies will share progress on integrating person-centered practices and tools into statewide and county-based long-term services and supports; a provider organization will outline their work to embed practices into every aspect of how they do business; and an advocacy leader who uses supports will share his history and experiences with person-centered practices and how he expects to be supported every day.

Maryland Salon F

Strand: Managed Care

Perspectives on Ensuring Person-Centered Support in an MLTSS Environment
Christina Dupuch, Vaya Health; Susan Seehase, Iowa Association of Community Providers; Steven Vernikoff, The Center for Family Support

This session will include perspectives on providing person centered supports and services for people with I/DD in a Managed Long Term Supports and Services (MLTSS) environment. Panelists representing a health plan, provider membership association and a community based organization will discuss their experiences and approaches to ensure that the principles of a person centered system are embedded in their daily operations and interactions with people and their families.


Strand: Federal and State Initiatives

Updates on Federal Policy: Home and Community Based Services
Melissa Harris, Centers for Medicare & Medicaid Services (CMS)

This session will highlight CMS activities underway across the country in enhancing home and community-based service provision. The session will describe implementation efforts at the state and provider levels to adhere to home and community-based settings criteria in ways that maximize opportunities for community integration. Provisions of the federal regulation will be addressed, along with the most recent implementation guidance published by CMS.

Maryland Salon D

Strand: Self-Advocacy

What is SARTAC and What Do They Do?
Teresa Moore, SABE; Tia Nelis, TASH; Juliana Huerena, SABE

In 2016, Self-Advocates Becoming Empowered (SABE) was awarded a Project of National Significance grant by the Administration on Community Living. This five-year project started the Self-Advocacy Resource and Technical Assistance Center (SARTC). Members of this panel will describe the vision that drives SARTAC, the broad range of resources and support available for self-advocates and their organizations, and future plans for expanding access to self-advocacy for people with disabilities.

Baltimore Salon A

Strand: Rights & Decision Making

Supported Decision-Making in Practice
Tina Campanella, Quality Trust/National Resource Center on Supported Decision-Making; Thelma Greene, Project ACTION!; Nicole Jorwic, The Arc

This session will look at current practices around the country being utilized to implement supported decision-making as an alternative to guardianship, and as a strategy for helping people become better decision-makers over time. Presenters will share stories of how this has worked to assist adults with developmental disabilities retain and regain individual rights and life control.