2018 Reinventing Quality Conference: Building an Infrastructure that Promotes Equity and Diversity

Return to 2018 Conference Schedule

Breakout C Sessions
Monday, July 30, 2018

Watertable Ballroom

Intelligent Lives Respondent Panel
Ruth Luckasson, University of New Mexico; Tina Campanella, Quality Trust; Karyn Harvey, Arc Baltimore; Julia Bascom, ASAN

This session will include panelist commentary and audience discussion following the screening of the film Intelligent Lives.

Maryland Salon C

Strand: Transitional Issues

Planning for the Long-Term: Creative State Approaches to Supporting Transition and Promoting Employment
Marissa Catalone, Delaware Health and Social Services; Sandra Miller, Delaware Division of Vocational Rehabilitation; Dale Matusevich, Delaware Department of Education; Erin Leveton, DC Department on Disability Services; Kevin Wright, DC Learners & Earners

Federal and state policies prioritize transition supports and employment. States have utilized unique ways to implement WIOA and HCBS transition planning to support youth and families. This session brings together a diverse panel from Delaware and Washington, DC to discuss coordinated activities that build self-advocacy, support informed decision making, coordinate state agencies, and build a no-wrong-door system that support diverse youth in families on their journey to a meaningful life after graduation.

Maryland Salon A

Strand: Self-Advocacy

Self-Advocacy Employment Symposium
Tia Nelis, TASH; Robert Kennedy, Consultant

Self-advocates have long been a voice for expanding access to employment. Even so, their voices are often only considered when they are given choices that either maintain their segregation or limit their capacity to become fully employed. Members of this panel will speak to their own experience with seeking economic equity, how best to engage them in the conversation and the need to shift from discussions about jobs to life-long careers.

Maryland Salon D

Strand: Housing and Overall Support Strategies

Perspectives on Housing and Supports from New Jersey's Neighbours, Pennsylvania's Self Determination Housing Project and the PA Health Law Project
Sandi Cooper, Neighbours, Inc.; Jeremy Donaldson, Neighbours, Inc.; David Gates, PA Health Law Project; Mary Penny, Self-Determination Project in PA

Neighbours (NJ), the Self Determination Housing Project (PA) and the PA Health Law Project have each demonstrated unique, successful approaches to housing supports for people with IDD living in the community. This presentation will provide an overview of their philosophies, the challenges they have faced, and the strategies they have successfully used to promote and support self-determination among those they work with.

Maryland Salon F

Strand: Rights & Decision Making

Beyond Guardianship: A National Council on Disability (NCD) Report
Morgan Whitlatch, Quality Trust for Individuals with Disabilities; Phoebe Ball, National Council on Disability (NCD); Dohn Hoyle, The Arc Michigan

The NCD completed a study and report on the consistency of guardianship practices with contemporary disability law and the impact on people who are under guardianship. The presenters will discuss the process used to collect data for this report and the major findings and how to implement necessary recommendations.

Maryland Salon E

Strand: Building Inclusive Communities

Living Life Your Way: How a Supports Broker Can Be Your Ally
Marian Frattarola-Saulino, Values Into Action; Lida Merrill, Heritage Christian Services; Javier Salazar, Values Into Action; Kelsey Breslin, Values Into Action; Erin Perry, Values Into Action; Kathy Perry, Values Into Action

Supports Brokers often focus on assisting with the urgent and important compliance and employer- related tasks. This can mean that the attention is not necessarily on the person accepting support and their aspirations. In our work, we hear that what's important to people are finding friends, meeting a potential romantic partner and spending time doing the things they enjoy in their neighborhoods and communities. This session will feature a woman and her Supports Broker who are doing just that: planning with friends (and a boyfriend) on places to go, things to do; navigating young adult life, using social media, finding and keeping a job; and thinking about life outside of the family' s home.

Baltimore Salon A

Strand: Federal and State Initiatives

Conflict of Interest (COI) and Case Management: State Experiences to Date in System Redesign
Robin Cooper (moderator), NASDDDS; Lee Grossman, Wyoming Developmental Disabilities Division; John Martin, Ohio Department of Developmental Disabilities; Darryl Millner, South Dakota Division of Developmental Disabilities

The January 2014 Home and Community-based Services rules defined new CMS expectations about conflict of interest (COI) and the provision of case management services to individuals receiving Medicaid funded HCBS. These rules apply to individuals served though the 1915(c) HCBS waiver, 1115 research and demonstration waivers, 1915(i) State plan HCBS and the 1915(k) Community First Choice authorities. The new rules require that states assure the provision of case management services— including eligibility determination, assessment and service planning—is separate from the provision of direct services. State developmental disabilities directors from Ohio, South Dakota, and Wyoming will discuss their experiences in redesigning and implementing the significant changes needed to meet these new requirements.

Maryland Salon B

Strand: Criminal Justice

Moving the Needle on Justice Reform for People with IDD
Ariel Simms (moderator), The Arc, Troy Grooms, Consultant; Brian Kelmar, Parent/Legal Reform for Intellectual and Developmental Disabled; Blake Kelmar, Consultant

Too often, the criminal justice system fails to appropriately respond to people with intellectual and developmental disabilities (IDD) who are suspected of a crime or defendants facing criminal charges. Criminal justice professionals also fail to recognize their legal obligations toward individuals with disabilities to ensure their equal access to justice. This session will highlight the lived experiences of two families who struggled to find their voice and obtain services in a system ill-equipped to serve those with disabilities. The panel will explore promising practices that create safeguards in the system and build bridges of communication between the disability and criminal justice worlds. New and innovative programs and tools are paving the way for a more inclusive, safer, and fairer justice system that respects the rights of all involved.

Baltimore Salon B

Strand: Direct Support Workforce

Elevating the Crisis: Leveraging Data and National Reports to Effect Change
Barbara Merrill, ANCOR; Amy Hewitt, University of Minnesota; Josh Evans, IARF; Mary Lou Bourne, NASDDDS

With a national turnover rate of 45%, the DSP workforce crisis has reached historic proportions. Panelists will discuss how advocates can use data from or advance the recommendations included in the report of the President’s Committee for People with Intellectual Disabilities, NCI Staff Stability Report, and the 2017 ANCOR Workforce Report.