2018 Reinventing Quality Conference: Building an Infrastructure that Promotes Equity and Diversity

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Breakout D Sessions
Tuesday, July 31, 2018
10:15-11:45am

Maryland Salon C

Strand: Employment

Building PROMISE: Increasing Educational and Employment Outcomes for Tribal Youth and Families
Carol Ruddell, Utah State Office of Rehabilitation; Tisha Harry, Disability Employment and Transitions

Now more than ever employment and post-secondary education are essential ingredients successful transition into adulthood. Yet many diverse communities, especially tribal communities, can be underrepresented in research and in federal and state initiatives. “Promoting Readiness of Minors in Supplemental Security Income” (PROMISE) is a joint national project between SSA, DOE, DOL, and HHS, with six model demonstration projects nationwide. APSIRE PROMISE has been operating in six western states (UT, CO, AZ, MT, SD, ND) since 2013. ASPIRE invested in purposeful planning and targeted supports to meet the unique needs of the youth from the 49 federally recognized sovereign tribes represented in ASPIRE states. From developing research protocol with tribal IRBs to hiring diverse case managers, ASPIRE staff have attempted to culturally and creatively support tribal youth and families on SSI to pursue education and employment. This session will leverage APSIRE’s lessons learned as important tools for developing future federal and state initiatives in partnership with tribal communities.

Maryland Salon D

Strand: Technology

Technology and the Partnership Between States and Providers
Barbara Turner, ARRM; Karin Stockwell, Dungarvin; Anna MacIntyre, Minnesota Department of Human Services

It is essential that providers engage in innovation and technological advancement. This panel will describe a state and provider partnership that supported systemic improvement in the use of technology. In Minnesota, providers engaged with state partners to develop statutory language changes to ensure that technology was not an exception to services, but rather a key piece of service provision. Combined with a robust Technology Resource Center to assist providers in this shift of thinking, Minnesota is committed to assuring that individuals with disabilities have all the tools available to support maximum independence.

Maryland Salon E

Strand: Building Inclusive Communities

Navigating the Pathway to Inclusion- Creative Initiatives Focused on Inclusion
Eric Jacobson, Georgia Council on Developmental Disabilities; Dana Thompson, Pennsylvania Developmental Disabilities Council; Graham Mulholland, Pennsylvania Developmental Disabilities Council

Developmental Disabilities Councils (DDCs) offer a unique and collaborative perspective on social justice and the impact people with disabilities have on their communities when provided with real opportunities to participate. This session will feature two DDCs with differences in location, leadership and initiatives, but united in their commitment to building and sustaining communities where everyone belongs and is able to contribute in ways that are meaningful to them, and that makes all lives better. This panel will highlight specific projects that have made the most impact on communities (not just the specialized disability service systems).

Maryland Salon B

Strand: Person Centered Practice

Person Centered Practices and Trauma Informed Care
Karyn Harvey, Arc of Baltimore; Michael Smull, Support Development Associates, Stephanie Morrison, Consultant

People who have been impacted by trauma need both responsive treatment and a healing environment. This session will share information on developing person centered plans that describe in detail what a healing environment looks like for each person and how The Arc of Baltimore worked to create them.

Maryland Salon F

Strand: Families

National Person and Family Centered Practice, Policy, and Systems Change
Laura Vegas (moderator), NASDDS; Barb Brent, NASDDDS National Community of Practice on Supporting Families; Erin Leventon, DC Department on Disability Services; Joe Caldwell, National Council on Aging, National Family Support Research and Training Center; Mary Anne Kane Breschi, Maryland Developmental Disabilities Administration

Over the last five years, the Administration on Community Living has focused many of its initiatives on systems, policy, and practice change that are needed to support families who have members with disabilities. This session will highlight the key innovation areas of the 16 states that are members of the National Community of Practice on Supporting Families. You will hear directly from the District of Columbia team as they provide examples of their policy and practice change initiatives and ways they have addressed cultural and linguistic competency in their work. The National Family Support Research and Training Center will share findings from its evidence-based family support practices and an overview of the current federal policies that impact families. Maryland will discuss its changes to policy and practices related to; case management, its waivers, and partnering with families.

Baltimore Salon A

Strand: Direct Support Workforce

Best Practices in Direct Support: 2017 & 2018 Moving Mountains Awardees
Tony Thomas (moderator), Welcome House, Inc.; Representatives from Black Hills Works- Rapid City, South Dakota (2018); The Arc of Northern Chesapeake - Aberdeen, Maryland (2018) ; Life’s WORC-; Garden City, Long Island, NY (2017); Penn-Mar- Glen Rock, Pennsylvania (2018); OADSP- Ohio Alliance for Direct Support Professionals- Columbus, Ohio (2017)

The Moving Mountain Awards, sponsored by NADSP, the University of Minnesota, and ANCOR, recognize organizations that have created, or are using, leading practices in direct support workforce development that result in improved outcomes for the people being supported. The 2017 - 2018 Award winners (To Be Announced) will share their best practices.

Baltimore Salon B

Strand: Expanding Self Direction Opportunities

Self Direction: The Promise, the Future
Mollie Murphy, Applied Self Direction; Bevin Croft, Human Services Research Institute; Erin McGaffigan, University of Massachusetts Boston/Collective Insight, LLC; Julie Schnepp, Mental Health Partnerships

Self-direction options have existed in Medicaid-funded long-term services and supports since the early 1970s. Today, every state in the US has at least one program with self-direction and many states have several. Self-direction has led to improved quality of life for individuals and caregiver satisfaction, and reduced nursing home and institution utilization in programs across the country. This session will examine how self-direction delivers promise when utilized in new and innovative ways and for populations previously not formally served by self-direction, particularly persons with serious mental health conditions. A mental health services researcher and current self-directing participant will share their perspectives on mental health self-direction’s impact on individuals and systems. Further, this session will examine the critical role of stakeholder engagement in designing services that meet the needs of the people they serve, providers of services, Managed Care Organizations, and states.

Watertable Ballroom

Strand: Housing and Overall Support Strategies

Introduction to Supported Living, Microboards and Person-Centered Environments
George Braddock, Creative Housing Solutions; Allan I. Bergman, HIGH IMPACT Mission-based Consulting & Training; Ruthie Marie Beckwith, TASH

The Administration on Community Living declares: “All Americans… the right to live in a home of their choosing, with people with whom they care about, that is integrated into a community that values their participation & contributions.” This policy statement clearly means that “home-like” is not a “home” and that placing a person into a vacant bed in a group home will not meet the CMS rule that “the service does not regiment individual initiative, autonomy and independence in making life choices.” This session will introduce the multiple processes to create a supported living situation, to develop a Microboard, and to create a person-centered environment.

Supported living begins with a well done person-centered plan and the person choosing where (owning, leasing, or renting) and the one or two other persons with whom they might live with. It separates housing from supports; as does a Microboard, which is a non-profit society of family and friends committed to knowing and supporting a person and having an unpaid reciprocal relationship with that person. Even in supported living and/or Microboards, too little attention is often paid to the critical role of the physical environment of the home in the discovery and person-centered planning process unless the person has a physical disability. Modifying and/or creating a person-centered environment converts a house into a home for and with a person with an intellectual or developmental disability. This person-centered environment can have a profound impact on the individual’s comfort and quality of life through increased independence and self-determination as well as safety and stability.

Maryland Salon A

Strand: Not identified

Working through the Intellectual and Developmental Disability Data Conundrum: Strategies for Collecting Better Data to Inform Program Planning and Policies
Jennifer Johnson, AIDD/ACL/ HHS; Gloria Krahn, Oregon State University; Andrew Morris, AIDD/ACL/ HHS; Alixe Bonardi, Human Services Research Institute; Susan M. Havercamp, The Ohio State University

There is tremendous interest in getting better data on the health status and prevalence of individuals with intellectual and developmental disabilities across states and how this information can be used to inform program planning and policies. The Administration on Intellectual and Developmental Disabilities (AIDD) within the Administration for Community Living (ACL), the US Department of Health & Human Services (HHS) along with external and internal experts have been exploring how to get a better data and an updated picture of health status and prevalence of individuals with intellectual and developmental disabilities across the States. This session will provide an update on discussions which have focused on developing survey questions for use on national studies and the use of state administrative data sets for better understanding this population.