2018 Reinventing Quality Conference: Building an Infrastructure that Promotes Equity and Diversity

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Breakout E Sessions
Tuesday, July 31, 2018
1:15-2:45pm

Maryland Salon F

Strand: Housing and Overall Support Strategies

Supported Living: Perspectives from Wisconsin, Oregon and California
Jennifer Knapp, Community Vision, Inc.; Kim Turner, Options in Community Living; Valerie Nix, NorthStar Services

Supported living is the separation of housing from supports; it applies to anyone with a disability, regardless of complexity. Representatives from three Supported Living organizations in three different states will share their current experiences in continuing to provide supported living services within evolving funding structures, including managed care environments. We will share stories, current challenges and hopes for the future.

Maryland Salon A

Strand: Families

Engaging Families in Person Centered Planning and Personal Outcomes
Jamie Stoner (moderator), The Arc Northern Chesapeake Region, Inc.; Julie Reynolds, Indiana Division of Disability and Rehabilitative Services; Amanda George, Missouri Support Coordination Entity

Person-centered planning serves as the foundational component for developing and achieving personal outcomes for persons with disabilities however the role of the family is sometimes overlooked in both the process and the implementation of the plan. A state system, a local support coordination entity and a local provider from three different states will share how they have used the Charting the LifeCourse framework and tools for providing person-centered supports within the context of the family that recognizes the needs and desires of the person with a disability while also providing supports to the family members, when appropriate.

Maryland Salon C

Strand: Employment

Exploring the intersectionality of Ethnicity, Disability and Employment
Derrik Willis, The University of Iowa; Julie Christensen, The University of Iowa

As the demographic makeup of our communities change, organizations must change as well. Understanding the needs of diverse populations and how to provide culturally responsive services is critical. This session will discuss how to transform organizational beliefs, explore strategies to reach diverse populations and provide examples of how to deliver services that respond to the needs of diverse populations.

Maryland Salon D

Strand: Managed Care

Business Acumen Learning Collaborative Panel Discussion: Building Capacity for Integrated Care
Sandy Hunt, New Hampshire Department of Health and Human Services; Joann Lamphere, Office for People With Developmental Disabilities; Wendy Witcig, Missouri Department of Mental Health

The goal of improving overall health and wellbeing for people with intellectual and developmental disabilities hinges on building capacity across the spectrum of health care, long-term services and supports, and habilitation services. Determining an overarching vision of what integrated quality care and support means is fundamental in this effort. As State IDD Directors, providers, people with disabilities, and families hold the key to creating successful, accountable, and visionary efforts, their collaboration is essential. This session will focus on initiatives underway in three states – Missouri, New Hampshire and New York, all part of the Disability Network Business Acumen Learning Collaborative. During the session, panelists will identify capacity challenges that influence growth of integrated care and provide examples of how capacity challenges were addressed; emphasize the importance of stakeholder collaboration and suggest ways to initiate collaborative partnerships; and, finally, demonstrate how collaboration among stakeholders can increase a state’s capacity for integrated care that meets the needs of people with intellectual and developmental disabilities.

Baltimore Salon A

Strand: Creating and Managing a Culture of Quality

Best Practice in Incident Management and Mortality Reviews: State and Provider Agency Collaboration
Alixe Bonardi, Human Services Research Institute; Mary Lou Bourne, NASDDDS; T. Jared Morris, DC Department of Disability Services; Erin Leveton, DC Department of Disability Services

Recent reports from federal agencies have highlighted the need to assure an effective and comprehensive incident management and mortality review system for all home and community based services. This session will highlight the findings of a report from NASDDDS highlighting current and promising practices from 13 states and a self-assessment tool for use by state agencies. Current best practice in Mortality Review will be discussed from the perspective what states can do to improve their mortality review activities. Lessons learned in the District of Columbia will be presented, notably in developing a mortality review committee with the responsibility to identify and recommend areas of improvement to both DDA and provider agencies. DC staff, along with stakeholders representing self-advocates and family members, the legal system, contracted providers, work together to assure mortality reviews result in efforts at prevention and to assure there is equity in health care access throughout the state.

Baltimore Salon B

Strand: Expanding Self Direction Opportunities

Overview of Various State, Federal and Private Quality Initiatives
Suzanne Crisp, Public Consulting Group/ Public Partnerships; David Horvath, Public Consulting Group/ Public Partnerships

This session provides an overview of various state, federal, and private quality initiatives which focus on measuring quality in the domains of choice and participant control. The discussion will include the Home Health Care Consumer Assessment of Health Care Providers Systems (CAHPS); Federal mandates including waiver assurances and Medicaid Managed Care Regulations; the National Core Indicator Project for Disabled and Elderly; and a brief overview of the recommendations of the National Quality Forum.

Maryland Salon E

Strand: Building Inclusive Communities

Communicating Community Inclusion through Media and Advocacy
Jerry Smith, University of Minnesota; John Smith, University of Minnesota; Ann Outlaw, Center on Knowledge Translation for Employment Research; Heidi Eschenbacher, University of Minnesota; Amie Lulinski, University of Colorado; John Butterworth, University of Massachusetts Boston

In this session, presentations and discussions will focus on amplifying community inclusion in the media, including how to communicate well (best practices), knowledge translations / technologies that assist communication, and the importance of accessible media platforms for advancing community inclusion.

Maryland Salon B

Strand: Unaffiliated

Beyond Tokenism: How can Your Organization Include People with Developmental Disabilities on Boards, Councils and Committees?
Mark Friedman, City University of New York; Tia Nelis, TASH/ Self-Advocates Becoming Empowered

People with intellectual and developmental disabilities have been serving on more Boards, Councils and Committees in recent years, yet, lack of representation and tokenism persists. In this presentation, you will learn the most effective methods that disability organizations are currently using to successfully include people with intellectual and developmental disabilities on their Boards, Councils, and Committees. How can you use these practices in your organization? The presentation is based on a federally funded study of DD Councils, Disability Rights agencies, University Centers of DD and advocacy organizations across the Country. Participants will use the newly developed Beyond Tokenism Self-Assessment Tool.

Watertable Ballroom

Strand: Unaffiliated

Strengthening Protections for Social Security Beneficiaries
Curt Decker, Executive Director National Disability Rights Network

On April 13, 2018 the Strengthening Protection for Social Security Beneficiaries Act of 2018 became law. This bill requires the Social Security Administration (SSA) to make annual grants to each state's protection and advocacy (P&A) system for the purpose of conducting reviews of representative payees. On August 1, 2018 the P&As will begin conducting these reviews to verify that representative payees are using benefits properly on behalf of beneficiaries and are carrying out their representative payee responsibilities and duties correctly. The presentation will focus on elements of the Strengthening Protections for Social Security Beneficiaries Act of 2018 and the potential impact of increased P&A monitoring.